Last time I posted, I'd just had my first colonoscopy and was optimistic of biopsy results that would explain what was going on in my gut, why I was so fatigued, and why I had lost so much weight.
Since then a lot has unfolded, but I'm in the worst condition of my life, and the health problems are piling up. Because of the inability to fix my severe stomach issues, I have not run to speak of, in 2013. After this many months of inactivity, my lungs have also deteriorated. The scary reality of what CF can do to a person is setting in for the first time since my only scare of serious lung infection in early 2004. My lung function has deteriorated to the point where I can't complete a sub-10 minute mile, and I vomit after about 15 minutes due to choking on my own mucus.
Since the stomach issues (thought to maybe be ulcerative colitis) haven't been fixed or improved, I now am fatigued all the time with no appetite, I crap bloody diarrhea 6-10 times a day, and I weigh 129 lbs (from 145).
I'm going to be hospitalized for a CF "tune-up" for the first time in my life next week. I hope this helps the lungs, but I'm still frustrated that the underlying GI issues haven't been fixed and are worsening.
To top things off, it's also looking like I might have Type 1 diabetes. This will be confirmed/denied next week when I'm in the hospital.
Good times, huh? I need to get this all behind me so my posts can be about epic adventures, and not so self loathing :)
Fingers crossed for better news next time I write.