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Tuesday, August 20, 2013

Worsening...

Last time I posted, I'd just had my first colonoscopy and was optimistic of biopsy results that would explain what was going on in my gut, why I was so fatigued, and why I had lost so much weight.

Since then a lot has unfolded, but I'm in the worst condition of my life, and the health problems are piling up. Because of the inability to fix my severe stomach issues, I have not run to speak of, in 2013. After this many months of inactivity, my lungs have also deteriorated. The scary reality of what CF can do to a person is setting in for the first time since my only scare of serious lung infection in early 2004. My lung function has deteriorated to the point where I can't complete a sub-10 minute mile, and I vomit after about 15 minutes due to choking on my own mucus.

Since the stomach issues (thought to maybe be ulcerative colitis) haven't been fixed or improved, I now am fatigued all the time with no appetite, I crap bloody diarrhea 6-10 times a day, and I weigh 129 lbs (from 145).

I'm going to be hospitalized for a CF "tune-up" for the first time in my life next week. I hope this helps the lungs, but I'm still frustrated that the underlying GI issues haven't been fixed and are worsening.

To top things off, it's also looking like I might have Type 1 diabetes. This will be confirmed/denied next week when I'm in the hospital.

Good times, huh? I need to get this all behind me so my posts can be about epic adventures, and not so self loathing :)

Fingers crossed for better news next time I write.

Brooks

23 comments:

Anonymous said...

Dang, hang in there dude - Positive vibes coming at you from the Midwest.

Flatlander

P. said...

that's heavy. i don't know you, but i hope life starts to give you some slack! good luck and i look forward to reading about your running again soon! - patrick t.

GZ said...

+1 to the comments above. Thinking of you man and hope this starts to turn.

Your GI issues ring familiar ... sounds a lot like what Aaron Kennard faced last year.

MtUnpaved said...

+2 to the comments above, I've followed your blog the last few years and it's been fuel for my fire. Hope you can figure it out and get things turned around. Here's to happier trails..

skatona said...

Damn, sorry to hear that. Try to stay positive. There are people that you don't know read your blog (and that you don't know...) that are pulling for you and wishing you the best.

:) said...

I've been reading your blog for a couple years, since you won the Brew to Brew race. I've always been impressed by the part of yourself that you show us, healthy and strong and positive.

I want to send along my good thoughts for your current situation. Also, thank you for the blog -Liz

Brandon Fuller said...

Here for you!

Rob said...

A reminder there are no bad days on the trail. We are all so lucky to be able to get out for a run and you deserve better than this. Hope your luck turns around. You're an inspiration to many with CF and beyond.

William Robinson said...

We were thinking about you up in Leadville over the weekend. Think positive and get well!

Footfeathers said...

I talked with Bill Dooper over the weekend and was touched by his concern and diligence in wanting to make sure your race packet was picked up and chip turned into the correct person, so I gave him my 100 run shirt (turns out I wouldn't need it after dnf-ing anyway :-).

Like I seem to blurt out to everyone I see during an ultra, "stay with it".

Dylan Bowman said...

Damn, Brooks. Good luck is all I can say. I'm here in Chamonix for UTMB and sprained the shit out of my ankle on my first run here. With the race now uncertain for me, I've felt really sorry for myself. Thanks for putting things in perspective.

All the best to you, bud. Look forward to future posts about epic epicness.

Dylan

rodbien.blogspot.com said...

So sorry to hear about this, man. I know I don't know you but this is horrible stuff. Keep your chin up and don't give in. Keep fighting and turn it around. I'll be thinking of you on my training today.
Rod Bien

Anonymous said...

Crud man. Try to keep positive and hollar to the CRUD guys if you need anything.

Richard

M Rubsam said...

Best wishes to you.

Natalee said...

6-10 times a day? That's a helluva lot of flat rocks. I'll start sending some from IN. In the meantime, Honey Badger this issue and get back on track!

Sean O'Day said...

Dude. I'll make you a Motley Crue mix.

Vega said...

Brooks know this, all your friends here and around the world are here for you my friend, brother and family. We are all family, so lean on us for support. Praying for you!!!!!

Brett said...

Fuuuuuuuu . My 11 year old daughter was diagnosed with Type 1 Diabetes at age 16 months. I can only hope that if you've got that, maybe blood sugars being out of control have inhibited your body's ability to heal itself or something in regards to your other health issues. I hope things begin to turn around soon for you!

That's Mr. McGoogly to you! said...

Hang in there, man. I didn't know you were having some health issues - I thought you were just taking some time off and enjoying the married life. I hope you start feeling better soon!

Ray Halbig said...

Hang in there Brooks!
My family was honored to meet you at last year's SJS and LT 100. My son, Matthew, also has CF and now CFRD. Stay strong. We'll keep you in our thoughts and take care! :-)

Shelley Flones said...

You are on my mind! That's all I've got. Holler if you need anything at all. No guts, no glory. I'm wearing one of the Many many Gu demon shirts right now!!

Wyatt Hornsby said...

Will keep you in our prayers, Brooks.

Wyatt

mike_hinterberg said...

Sorry to hear man, stay strong.
You've been so inspirational with what you've been able to do with CF. Still hoping and optimistic with regard to research.