Last time I posted, I'd just had my first colonoscopy and was optimistic of biopsy results that would explain what was going on in my gut, why I was so fatigued, and why I had lost so much weight.
Since then a lot has unfolded, but I'm in the worst condition of my life, and the health problems are piling up. Because of the inability to fix my severe stomach issues, I have not run to speak of, in 2013. After this many months of inactivity, my lungs have also deteriorated. The scary reality of what CF can do to a person is setting in for the first time since my only scare of serious lung infection in early 2004. My lung function has deteriorated to the point where I can't complete a sub-10 minute mile, and I vomit after about 15 minutes due to choking on my own mucus.
Since the stomach issues (thought to maybe be ulcerative colitis) haven't been fixed or improved, I now am fatigued all the time with no appetite, I crap bloody diarrhea 6-10 times a day, and I weigh 129 lbs (from 145).
I'm going to be hospitalized for a CF "tune-up" for the first time in my life next week. I hope this helps the lungs, but I'm still frustrated that the underlying GI issues haven't been fixed and are worsening.
To top things off, it's also looking like I might have Type 1 diabetes. This will be confirmed/denied next week when I'm in the hospital.
Good times, huh? I need to get this all behind me so my posts can be about epic adventures, and not so self loathing :)
Fingers crossed for better news next time I write.
Brooks
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3:24.xx - 7th Place
Pikes Peak Ultra - 50 Miles
11:06.xx - 9th Place
2015:
Silverheels 100
28:28 - 8th Place
Desert Rats - 57 Miles
8:35 - 3rd Place
2014:
Catalina Eco Marathon
5:23.01
White River - 50 Miles
9:21
Colorado Marathon
3:34.48
24 Hours of Palmer Lake
41.82 Miles in 7:24.00
2013:
Colorado Marathon
3:24.30 - Sick
Colorado Colfax Marathon
3:35.46 - Sick
2012:
Bear Chase - 50 Miles
7:31.05 - 5th Place
Colorado Colfax Marathon
2:50.02 - 4th Place
Collegiate Peaks - 25 Miles
3:32.xx - 6th Place
Rocky Raccoon - 100 Miles
14:58.37 - 4th Place (100 Mile PR)
2011:
Bear Chase - 50 Miles
6:58.55 - 2nd Place (50 Mile PR)
Leadville Trail 100
21:21.31
White River - 50 Miles
7:49.49 - 7th Place
San Juan Solstice - 50 Miles
9:48.17 - 6th Place
Collegiate Peaks - 50 Miles
7:38.15 - 5th Place
Boston Marathon
2:49.37 (Marathon PR)
Brew to Brew - 44 Miles
5:35.31 - 1st Place
Salida Marathon
3:35.31 - 8th Place
2010:
The North Face, San Francisco - 50 Miles
8:48.37
Deadman Peaks - 54 Miles
9:26.20 - 2nd Place
Bear Chase - 50 Miles
7:16.44 - 3rd Place
Run Rabbit Run - 50 Miles
9:21.00 - Very sick on raceday
Leadville Trail 100
19:57.52 - 11th Place
Hardrock Hundred
DNF
Blue Canyon - 50 Miles
11:02.00 - 1st Place
Jemez Mountain - 50 Miles
10:56.12
Colorado Colfax Marathon
2:55.16 - 3rd Place
Collegiate Peaks - 50 Miles
7:46.05 - 8th Place
Desert R.A.T.S. - 50 Miles
9:02.50
Salida Marathon
4:08.43
Rocky Raccoon - 100 Miles
17:31.26 - 12th Place
2009:
Xterra Trail Marathon
4:16.05 - 4th Place
The North Face, Washington, D.C. - 50 Miles
7:45.42 - 6th Place
Leadville Trail 100
23:21.27
Bighorn - 50 Miles
10:22.27 - 10th Place
Colorado Colfax Marathon
3:05.32 - 11th Place
Collegiate Peaks - 25 Miles
3:55.59
Desert R.A.T.S. - 50 Miles
8:49.26 - 6th Place
Carlsbad Marathon
3:35.30 - Injured
2008:
Denver Marathon
3:21.53
MAS 50
11:04.00 - 1st 50 Miler
San Francisco Marathon
3:15.54
High Mountain 50k
5:21.54 - 7th Place
Estes Park Marathon
3:35.41
Colorado Marathon
3:21.26
2007:
Denver Marathon
3:31.39
ADT Marathon
3:21.54 (1st time running over 16 miles)
My Story
In the News
Facts About Cystic Fibrosis
-CF is a primarily a respiratory disease that clogs the lungs with mucus and leads to life-threatening lung infections
-About 1000 cases are diagnosed each year
-In 1955 life expectancy was around 7 years
-In 2000 life expectancy was 32
-In 2008 the median life expectancy rose to 37
-About 1000 cases are diagnosed each year
-In 1955 life expectancy was around 7 years
-In 2000 life expectancy was 32
-In 2008 the median life expectancy rose to 37
2019 Adventure Schedule
April - Grand Canyon - R2R2R
May - Collegiate Peaks 50 Miler
June - San Juan Solstice 50 Miler - Cancelled
August - Angeles Crest 100
August - Leadville Trail 100
marathon/ultra results
2019:
Leadville Trail 100
23:38:15Angeles Crest - 100 Miles
DNFCollegiate Peaks - 25 Miles
3:59.352018:
Leadville Trail 100
22:56.27
Leadville Silver Rush - 50 Miles
8:41.46
Leadville Marathon
4:57.11
2017:
The Hennepin Hundred - 100 Miles
19:03.58
San Juan Solstice - 50 Miles
11:49.14
Greenland 50k
4:50.43
American River - 50 Miles
8:40.54
2016:
ADT Marathon
3:24.xx - 7th Place
Pikes Peak Ultra - 50 Miles
11:06.xx - 9th Place
2015:
Silverheels 100
28:28 - 8th Place
Desert Rats - 57 Miles
8:35 - 3rd Place
2014:
Catalina Eco Marathon
5:23.01
White River - 50 Miles
9:21
Colorado Marathon
3:34.48
24 Hours of Palmer Lake
41.82 Miles in 7:24.00
2013:
Colorado Marathon
3:24.30 - Sick
Colorado Colfax Marathon
3:35.46 - Sick
2012:
Bear Chase - 50 Miles
7:31.05 - 5th Place
Colorado Colfax Marathon
2:50.02 - 4th Place
Collegiate Peaks - 25 Miles
3:32.xx - 6th Place
Rocky Raccoon - 100 Miles
14:58.37 - 4th Place (100 Mile PR)
2011:
Bear Chase - 50 Miles
6:58.55 - 2nd Place (50 Mile PR)
Leadville Trail 100
21:21.31
White River - 50 Miles
7:49.49 - 7th Place
San Juan Solstice - 50 Miles
9:48.17 - 6th Place
Collegiate Peaks - 50 Miles
7:38.15 - 5th Place
Boston Marathon
2:49.37 (Marathon PR)
Brew to Brew - 44 Miles
5:35.31 - 1st Place
Salida Marathon
3:35.31 - 8th Place
2010:
The North Face, San Francisco - 50 Miles
8:48.37
Deadman Peaks - 54 Miles
9:26.20 - 2nd Place
Bear Chase - 50 Miles
7:16.44 - 3rd Place
Run Rabbit Run - 50 Miles
9:21.00 - Very sick on raceday
Leadville Trail 100
19:57.52 - 11th Place
Hardrock Hundred
DNF
Blue Canyon - 50 Miles
11:02.00 - 1st Place
Jemez Mountain - 50 Miles
10:56.12
Colorado Colfax Marathon
2:55.16 - 3rd Place
Collegiate Peaks - 50 Miles
7:46.05 - 8th Place
Desert R.A.T.S. - 50 Miles
9:02.50
Salida Marathon
4:08.43
Rocky Raccoon - 100 Miles
17:31.26 - 12th Place
2009:
Xterra Trail Marathon
4:16.05 - 4th Place
The North Face, Washington, D.C. - 50 Miles
7:45.42 - 6th Place
Leadville Trail 100
23:21.27
Bighorn - 50 Miles
10:22.27 - 10th Place
Colorado Colfax Marathon
3:05.32 - 11th Place
Collegiate Peaks - 25 Miles
3:55.59
Desert R.A.T.S. - 50 Miles
8:49.26 - 6th Place
Carlsbad Marathon
3:35.30 - Injured
2008:
Denver Marathon
3:21.53
MAS 50
11:04.00 - 1st 50 Miler
San Francisco Marathon
3:15.54
High Mountain 50k
5:21.54 - 7th Place
Estes Park Marathon
3:35.41
Colorado Marathon
3:21.26
2007:
Denver Marathon
3:31.39
ADT Marathon
3:21.54 (1st time running over 16 miles)
23 comments:
Dang, hang in there dude - Positive vibes coming at you from the Midwest.
Flatlander
that's heavy. i don't know you, but i hope life starts to give you some slack! good luck and i look forward to reading about your running again soon! - patrick t.
+1 to the comments above. Thinking of you man and hope this starts to turn.
Your GI issues ring familiar ... sounds a lot like what Aaron Kennard faced last year.
+2 to the comments above, I've followed your blog the last few years and it's been fuel for my fire. Hope you can figure it out and get things turned around. Here's to happier trails..
Damn, sorry to hear that. Try to stay positive. There are people that you don't know read your blog (and that you don't know...) that are pulling for you and wishing you the best.
I've been reading your blog for a couple years, since you won the Brew to Brew race. I've always been impressed by the part of yourself that you show us, healthy and strong and positive.
I want to send along my good thoughts for your current situation. Also, thank you for the blog -Liz
Here for you!
A reminder there are no bad days on the trail. We are all so lucky to be able to get out for a run and you deserve better than this. Hope your luck turns around. You're an inspiration to many with CF and beyond.
We were thinking about you up in Leadville over the weekend. Think positive and get well!
I talked with Bill Dooper over the weekend and was touched by his concern and diligence in wanting to make sure your race packet was picked up and chip turned into the correct person, so I gave him my 100 run shirt (turns out I wouldn't need it after dnf-ing anyway :-).
Like I seem to blurt out to everyone I see during an ultra, "stay with it".
Damn, Brooks. Good luck is all I can say. I'm here in Chamonix for UTMB and sprained the shit out of my ankle on my first run here. With the race now uncertain for me, I've felt really sorry for myself. Thanks for putting things in perspective.
All the best to you, bud. Look forward to future posts about epic epicness.
Dylan
So sorry to hear about this, man. I know I don't know you but this is horrible stuff. Keep your chin up and don't give in. Keep fighting and turn it around. I'll be thinking of you on my training today.
Rod Bien
Crud man. Try to keep positive and hollar to the CRUD guys if you need anything.
Richard
Best wishes to you.
6-10 times a day? That's a helluva lot of flat rocks. I'll start sending some from IN. In the meantime, Honey Badger this issue and get back on track!
Dude. I'll make you a Motley Crue mix.
Brooks know this, all your friends here and around the world are here for you my friend, brother and family. We are all family, so lean on us for support. Praying for you!!!!!
Fuuuuuuuu . My 11 year old daughter was diagnosed with Type 1 Diabetes at age 16 months. I can only hope that if you've got that, maybe blood sugars being out of control have inhibited your body's ability to heal itself or something in regards to your other health issues. I hope things begin to turn around soon for you!
Hang in there, man. I didn't know you were having some health issues - I thought you were just taking some time off and enjoying the married life. I hope you start feeling better soon!
Hang in there Brooks!
My family was honored to meet you at last year's SJS and LT 100. My son, Matthew, also has CF and now CFRD. Stay strong. We'll keep you in our thoughts and take care! :-)
You are on my mind! That's all I've got. Holler if you need anything at all. No guts, no glory. I'm wearing one of the Many many Gu demon shirts right now!!
Will keep you in our prayers, Brooks.
Wyatt
Sorry to hear man, stay strong.
You've been so inspirational with what you've been able to do with CF. Still hoping and optimistic with regard to research.
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